By Audrey Raymonda John
In a press conference held at Hotel 5-10 on Tuesday, April 9, 2024, Max Bangura, the Director of Epilepsy Association in Sierra Leone, addressed misconceptions and stigmas surrounding epilepsy. He emphasized that epilepsy is neither demonic nor contagious and called for increased awareness and understanding of the condition.
Bangura highlighted that epilepsy, often misunderstood as a “dangerous sickness,” is in fact treatable and preventable. He stressed the importance of dispelling myths that contribute to discrimination against individuals with epilepsy in society.
The Director proudly announced the Epilepsy Association’s involvement in international efforts, including having voting rights at the International Bureau of Epilepsy in the UK. He disclosed that they have trained 3500 health workers to treat epilepsy and have partnered with the UK to procure proper medication for affected individuals.
Bangura revealed that there are over 20 types of epilepsy, each requiring different treatment drugs. He expressed concern over the impact of stigma on individuals and families, noting that discrimination often prevents children with epilepsy from attending school.
According to Bangura’s findings, approximately 85,000 people in Sierra Leone are living with epilepsy. He underscored the significance of the Intersectoral Global Action Plan on Epilepsy and Other Neurological Disorders 2022–2031, adopted by Member States in May 2022, which focuses on policy, diagnosis, treatment, prevention, and research efforts.
To support the global action plan, Bangura urged community education and the dispelling of myths surrounding epilepsy and other neurological disorders. He emphasized the importance of promoting inclusion by supporting organizations that include individuals with epilepsy in various aspects of society, such as education, employment, and social activities.
Bangura concluded by emphasizing the critical role of research in advancing prevention, early detection, treatment, and potential cures for epilepsy and other neurological conditions.
The Director’s statements signal a significant step towards combating stigma and promoting inclusion for individuals living with epilepsy in Sierra Leone.